My life, as it is right now, requires an awful lot of resilience and not taking things to heart. Self-employment, and building a baby business from a wobbly toddler into a well-established grown-up, involves a lot of knock-backs, negativity from others, and periods of ‘is this amount of stress worth it?’ I had previously struggled with resilience but now feel that many things skim over me without touching down.
However, add charity work to the mix and resilience moves up to the next level! To be blunt, I run a charity brand with zero budget. Everything I have achieved over the past 3 years has either cost nothing or has been paid for out of my own salary (The Foggy toy cost £4.99 from Ebay, but posting him to Japan cost double that – Foggy travelled 196,000 miles during his first world tour. My salary was bashed that year!). Unfortunately, now I am the business owner of a start-up, a salary isn’t there to be dipped into when necessary. This means I am reliant on the kindness of others.
Myalgic Encephalomyelitis (M.E) is not a popular or ‘sexy’ illness. It is massively misunderstood and underestimated; this makes recruiting people to help incredibly difficult. I find most help comes from sufferers (who simply don’t have any energy) or their family and friends. I want to change that. I want non-sufferers to get involved and help. In the same way that people who don’t have any connection to Cancer, Alzheimers or the Armed Forces help with fundraising for related charitable causes. M.E affects 250,000 people here in the UK and 17 million people worldwide. It is highly likely that you know someone who suffers from the condition.
I’ll admit, my inner Lioness comes out to play when I am faced with prejudice or ignorance from the public or healthcare profession. I have a bit of a roar (inside my head) and then resilience kicks in. The world will always contain ignorant people. Some doctors claim M.E doesn’t exist. They claim that we need to have some psychotherapy to pull ourselves out of it. WRONG. Watch this clip – Does this young woman look like she needs psychotherapy?
M.E is a physical, neurological illness. The World Health Organisation recognises it as a physical condition so why the heck can’t healthcare professionals? (See?…Lioness – I think it’s the hair…I am a red head!).
Please get in touch if you would like to help in the following ways with my charity campaign:
Want to be part of Team Foggy and help with admin, etc.
Contact me via firstname.lastname@example.org